I am aware that many of my posts have been generally quite negative in nature. I don’t mean them to be and I definitely don’t feel like that all the time. However, last night’s post was probably the darkest I have written so far. It seems fitting then that the dark can finally be followed by some light.
The appointment today went well – better than we could ever have imagined. I haven’t allowed myself to hope because I couldn’t put my self in a position where my heart could break again. Indeed it’s hard to have any hope when the letter from the consultant says that Eleri is unlikely to be cured. Today we were thrown a crumb.
Eleri’s scans showed that the tumour hadn’t grown, in fact it had reduced in size. It was still there, but seemingly shrinking. This is encouraging, very encouraging. Eleri is by no means out of the woods, but she will get more chemotherapy and potentially have the tumour resected. We have one more round and one more scan before we know for sure. Anything could happen in that time, but for now we are happy. We are happy for the first time in weeks. Rob summed it up in the car on the way back from the hospital, without any real thought or contemplation he said ‘I had forgotten what this feels like.’ He meant happy, he meant content. It might not last long, but for today and tonight we have had a win. We will keep gathering the crumbs of hope and holding them as close as we can. Tonight we celebrate and tomorrow we face what is to come.
Who invited cancer? 
Absolutely amazing news! Eleri the little warrior! Bask in the light you definitely deserve some at long last! Love you all xxxxx
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Thank you for sharing. We need to keep posting about our experiences of childhood cancer, to try to raise awareness, even in those dark days, and just hope that even if just one person reads it, they will be better informed. Best wishes!
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Thank you. The more we experience the more I realise that childhood cancer is something not to be ignored or hidden in the shadows. Everyone needs to know and think about it, even if it is difficult to stomach. Shining a light is good and I’m glad you are doing the same.
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I’m a first time reader of your blog and my heart goes out to you and your family. I am a recent adult survivor of cancer, and not out of the woods yet myself. I know how hard she must be fighting, and how supporting her and seeing her so unwell must be destroying you. Its beyond unfair. I want you to know you are not alone, and if there is anything I can do to help her, you, or any of your family going through this rotten journey then please, please let me know. We are all fighting cancer together.
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Thank you Kathleen. It’s wonderful to know that we have so many people supporting us. It really does mean a lot x
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My heart goes out to you and your family also. I can’t begin to imagine what you are going through. As Kathleen says if you need anything please let us know. I have been collecting up the lego cards for you and given them to Kirsty to post. Kathleen is the lady who has given me so many that you guys needed. We hope this can bring a smile to your daughters face.
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Thank you so much. That is so kind of you. They will cheer Eleri up immensely x
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Your very welcome!! X
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