Five weeks strong…

My posts have been few and far between in the last few weeks. It’s not what I wanted but sometimes you have to resign yourself to life not flowing in the direction you want to take. I’m learning that this is ok and you have to go with it for a while and hope you … Continue reading Five weeks strong…

How are you doing?

This is a question we are asked everyday, by everyone. It’s a reasonable enough - people are worried. They really do care about how Eleri is coping with treatment and how we are holding up as a family. The problem, in the last two weeks, has been that we haven’t really known how to answer … Continue reading How are you doing?

Thank you…

I wanted to take a moment and explain a bit more about osteosarcoma, Eleri’s future and the support she may need. I wrote this post last week and just haven’t had time proof read it and publish. Her treatment has deviated a little since then, but I will explain all that in another blog. Before … Continue reading Thank you…

Bravery

We have had a difficult week. Eleri has been pretty poorly and it has put halt to everything. You know it’s been tough when the medical staff are using words like brave, courageous and strong. The word brave has stuck in my head and I have been pondering over it. Sometime ago I came to … Continue reading Bravery

The playroom is not for us…

Comic Relief, Children In Need, Sport Relief, Text Santa - the list goes on. All these wonderful shows do an amazing job at raising money and awareness for people in heartbreaking situations. We have all seen the short films that they make documenting the charities and people they support; street children in Africa, mental heath … Continue reading The playroom is not for us…

I’m sorry, Osteosar – what?

It started just before Christmas, December 23 to be exact. Eleri woke in the night complaining of a pain in her leg. For her to wake and ask to come into our bed is not unusual. We try to put her back which ends in some kind of hysterical response from her and us having … Continue reading I’m sorry, Osteosar – what?

Crowning glory

Eleri's little body has been battling Osteosarcoma for some time. Until recently, no one would have known that she was so poorly. However, with chemotherapy looming, it is about to become far more obvious. Her thoughts have turned to her hair. She has been unbelievably brave with her diagnosis, but losing her crowning glory has … Continue reading Crowning glory